Wednesday, July 13, 2005
a note for anyone looking at all of the really worthwhile charities out there and trying to decide which one to send those hard earned dollars to, one of the really fine ones for the patients with a genetic disease few really know much about and that is woefully undervalued and terribly misunderstood even tho it is more prevalent than most other genetic diseases combined, one in every 4000 births, is NF1, neurofibromatosis aka wrongly, as elephant man's disease. a wonderful site for research on a cure and info for families is, www.ctf.org , children's tumor foundation, check it out.
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1 comment:
Hello there thanks for spreading the word about nf. But just a note, nf1 is 1 out of the 3 types of nf. so I think its better to talk about nf in general instead of focusing just on nf1.
nf2 on the other hand, affecte one child in every 40,000 births.
That's all now. cheers!
www.yvonnefoong.com
www.nfmalaysia.org
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