got this just now. i've posted about it before.
strange coincidence, last thursday night i was down at the club and there were a few of us sitting talking and 2 of the ladies mentioned that they had seen a medical/plastic surgery show(yes, the talk started about "boobs")
and about how gross this man looked with huge tumors of the face and the surgery and how they would just die or have gotten plastic surgery sooner.

i tried to explain the whys and why nots and risks and how plastic surgery can only do so much.

i was going to explain to them that the genetic disease is the same one that i have but really, i was just too sad thinking of that man. i've seen surgeries for some of the worse effects it can have. i've seen documentaries.

i just was too disheartened.


anyway, it's really simple to google neurofibromatosis or
NF, or any of the NF organizations like,

www.nfmidatlantic.org