Tuesday, November 17, 2009

i joined an NF support/chat group on facebook. actually, more than 1 group but the one i am writing about lets us ask each other questions and offer moral support and learn

it is so sad and so WRONG that so many people are isolated and do not get the info to deal with the things this disease can bring.

sadder still, are the people that have hidden themselves away because they have the more visible physical signs of NF.

we really need to give this disease the attention it deserves. it is quite common really, as genetic things go and if the general population knew what it was and understood it then i believe that people would not be as cruel or as unthinking as some are.

we need the medical community as a whole to understand more that the little they learn about it in school. they are going to come across this more and more unfortunately and they need to understand ALL of the effects of it and how it can look like other conditions and diseases.

i'll get off of my soapbox now. thank you. ; )

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