i was just on facebook and had a very nice and very interesting chat with a young friend-a member of the NF support group there. he lives in europe and he sees the same thing in the medical community that i do here.

NF is misunderstood and not given the attention that it really should-if for no OTHER reason that it affects more children at birth than the next 3 genetic diseases combined.

i'd love to see a telethon started for it.
i'd also like to see it more widely talked about and understood by the public.

do you know that researchers think that by studying NF, they may very well find a cure for cancers? it's true!

anyway, that's my little NF soapbox moment for today.