this is a wonderful organization. they do so much, especially for kids with NF.
on a personal note EVERY time i have e-mailed them with a question they have been right there with answers or referrals to some of the finest doctors in the field. one of which, dr. cynthia tifft who is the head of the NF clinic at children's medical center in washington dc. was right there to help out with a medication question. she went above and beyond for me even tho we had never and will never meet.

so if you are looking for a charity to donate to. this is an excellent one.

thanks, sherry